Young patients with chronic conditions such as fibromyalgia and POTS face significant delays in receiving appropriate medical treatment. This issue is particularly acute for those under 18, who often encounter bureaucratic hurdles and long waiting lists. The consequences include missed educational opportunities, social isolation, and worsening health conditions.
Pain Points
- Long waiting lists for specialist appointments
- Inadequate pain management and lack of medication
- Bureaucratic hurdles preventing timely treatment
- Missed educational and social opportunities
- Lack of urgency and understanding from medical professionals
I have fibromyalgia and suspected POTS and basically I’m 17 I need meds to treat my fibromyalgia so I can continue college I was kicked out the last time I tried to go because I could not attend consistently because of my pain and now finally after waiting (fuck u nhs) almost a year I’m getting “treatment” except they won’t give me any medication for my constant pain,anxiety and depression that comes with having fibromyalgia because I’m not 18 and because they “can’t do anything till I have my cardiology appointment” (over a year waiting list for one appointment) and tho I’ve had my ecg and a sitting standing type test alongside all my symptoms confirming it’s pots they still won’t help me when I asked further they mentioned the heart murmur I had AS A BABY I was almost 2 months early it’s completely normal and not concerning especially when your younger to have a heart murmur ok we know what’s wrong with me. I just want to go to college but I won’t be able to get treatment in time to be able to manage it and I mean it’s fibromyalgia the waiting list is full of thirty something women who have gotten to enjoy there teens I’m so fucking done with this i already missed a whole year because of college not to mention how much of high school i missed because of this i just want them to see the urgency the most treatment I’ve been offered is a support group a fucking support group no doubt full of people on pain medication I don’t know what to do I feel like I’ve just got to watch time pass I’ve got no friends because I’m not is college there’s not many places to make friends my age without it, I’ve got no education, I’ve got nothing. Does anyone know what I can do from here?